Owen said, as he snuggled down in our sheets trying not to hear the thunder that was crashing outside our window. It was 10:30 pm and all the other kiddos were dreaming away in their beds. I had been reading a blog of a young family who just had their 3rd baby, a little girl named Nora Rose. She, too has Trisomy 18. Our friend, John had sent me the link and as I looked at the photos of this 2 week old beautiful baby, I could see Lulu’s face. I don’t know this family, but as I look at her mama in the photos, I cry tears of joy for her baby girl she is holding and I cry tears of grief for my baby girl that I wish I could hold for just a little longer. And then I look at Owen, tears running down his cheeks, missing his sister still and that’s when he said, “I miss her all the time”.
It’s a journey that never ends.
The paths are different now. They pull from us in a way that we are still not familiar with, we are not used to. They make us think more – work more – carry more.
And then someone says, “I miss her”
“I think about her so often”
“When I see bubbles, I think of Lulu”
“I will be forever grateful to have held your baby”
To know that our daughter is loved so much. That she is still a part of so many lives. I can barely whisper, thank you.
Thank you, for sharing your thoughts of her.
Thank you for letting us still cry.
Thank you for asking us how we are and letting us honestly answer.